Inspirational Stories

Hearing stories from others about their lymphoedema can be very encouraging. Watch these videos to learn more about lymphoedema and the challenges those managing the condition face as they share their experiences.

Linval

“Once you’ve accepted it, you just get on with your life”

  • 59 years old with primary lymphoedema of the lower limb
  • Symptoms started 30 years ago
  • Learn more about how music helps Linval manage his lymphoedema

Kelly

“Don’t panic. It’s going to be okay, you just have to manage it well.”

  • 25 years old with secondary lymphoedema of the lower limb
  • Caused by several operations to fix ischemic bowel
  • Learn more about how compression therapy helps Kelly manage her lymphoedema

Rachel

“Let’s look at the positives and how we can get back to the new normal.”

  • 49 years old with secondary lymphoedema of the upper limb
  • Left arm started to swell during cancer treatment
  • Learn more about how focusing on what she can do rather than what she can’t do helps Rachel manage her lymphoedema

Lucinda

“Sharing knowledge about lymphoedema and solutions about things would be very valuable”

  • 58 years old with secondary lymphoedema of the upper limb and lipoedema
  • Right arm started to swell during cancer treatment
  • Learn more about how being active helps Lucinda manage her lymphoedema and lipoedema

Deborah

“I’m probably more of an athlete than I would have been if I didn’t have lymphoedema.”

  • Secondary lower extremity lymphoedema
  • Competed in the CrossFit Games three times
  • Won the Spirit of the Games Award in 2012

Cynthia "MsCjay"

"To me, the lymphoedema community is my family. That is where I'm the happiest".

  • Secondary upper extremity lymphoedema
  • Patient Advocate and co-host of the Lymphoedema Mavens Podcast

Robin

"People can sympathise with you, but no one can empathise unless they actually have it because they don't really understand."

  • Secondary upper extremity lymphoedema
  • Patient advocate

Tristen and Tammy

"Tristen is a real role model for a lot of these kids... These kids are seeing that you're not going to be limited by this, you just have to take care of yourself so that you can."

Tristen:

  • Primary, bilateral lower extremity lymphoedema, born with swelling
  • Patient advocate

Tammy:

  • Tristen's mother
  • Received training in Manual Lymphatic Drainage (MLD) to help her son
  • Parent advocate

Amy

“Share your story with others. You’ll be relieved and through that you will inspire millions.”

  • Primary bilateral lower extremity lymphoedema
  • Misdiagnosed for 18 years
  • Patient advocate and Mrs Florida International