Things often get easier as the lymphoedema or lipoedema improves and becomes more manageable over time. We all feel angry, self-conscious and low at times, but this can be heightened when we develop a condition, and we feel we have no control of our body and feelings. It is times like these we could consider finding others, that can relate to what we are going through and see what people have done to combat their struggles.
It is normal to feel angry about having lymphoedema or lipoedema, it is extra time and effort in taking care of yourself and finding what it will take to best manage everything. Try not to hide your feelings; talk to people you trust about how you are coping and as your lymphoedema reduces you'll be more able to enjoy the things you once did or even find new activities to replace them.
You may feel responsible that you could have done something to prevent lymphoedema or lipoedema. Unfortunately, we still don't know enough about the triggers and have a significant lack of medical knowledge and expertise. It's very important to remember that it's not your fault, and even those who have tried to reduce the risk of developing lymphoedema still can get the condition.
It is normal to feel embarrassed and worry that people are staring at you. Lymphoedema or lipoedema can be reduced, give it time and hopefully, you will find that you become less self-conscious about it. Try wearing looser clothing; this could help while your body changes.
You may feel low or depressed because you don't have enough support. Try to let family and friends know about how you are feeling so they can help you. It is natural to want to be left alone to sort out your thoughts and feelings, however, if you are avoiding people, feeling anxious and sad most days then try to talk to your doctor or nurse. Emotional signs of depression can include:
- feeling down, upset or tearful most or all the time
- constantly worrying
- feeling empty and numb
- isolating yourself and unable to relate to other people
- having no pleasure in life or things you usually enjoy
- no self-confidence or self-esteem
- feeling hopeless.
Advice and Support
If you are having any of the symptoms above and need to talk to someone, there are a range of services that are here to help. Some people find joining a support group or online community extremely helpful, and you may feel less alone. There are several online resources, you can talk to your doctor, and those around you that you trust.
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After more than two years of social distancing, you’re probably looking forward to getting out into the world again. Whether that’s meeting up with friends or family you’ve not seen for a long time or, perhaps, you’re thinking about going on a physical date; a dinner, rather than meeting for a virtual coffee? For many of us, this is something we may no longer be used to and, if you have lymphoedema or lipoedema, the prospect of an upcoming date comes with additional challenges.
June is Lipoedema Awareness Month
June has been designated as Lipoedema Awareness Month, which gives us the chance to raise awareness and make lipoedema a global priority. Medical societies, companies, and patient organizations in several countries will be launching campaigns to educate patients, their families and friends, and healthcare professionals about this condition.
Healthy Treats for the Winter Season
Most of us associate wintertime with cozy evenings at home, enjoying indulgent treats. What would winter be without all these sweet goodies? Balanced nutrition is an important part of lymphoedema and lipoedema treatment as being overweight can worsen your symptoms. If you want to stick with your healthy lifestyle, we have some good news: there are plenty of healthy alternatives to enjoy.
New Year's resolution: Friend or foe?
It's a common phenomenon that we observe at the beginning of every new year: many of us join fitness clubs, we decide to eat healthier, move and exercise more. We often set ambitious goals but just as quickly neglect them. Why do our New Year's resolutions fail ever so often and what can we do instead?
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Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me
Claudia Lymphoedema patient