Lipoedema and Genetics
It’s still not quite clear why and how lipoedema develops. However, many lipoedema patients report a positive family history. This means that if your mother or other female relatives are also affected by lipoedema, your situation is a very common one. Genetics are likely to play a role in the development of lipoedema. However, research on the exact mechanism of why and how lipoedema develops is still ongoing.
Hormonal Changes and the Onset of Lipoedema
No matter when the first lipoedema symptoms occur, they usually coincide with weight gain and hormonal changes. These can be related to puberty or starting to take birth control pills, as was likely the case in your situation. But it can also affect pregnant or menopausal women.
Challenges with Lipoedema
Living with lipoedema can be difficult, but it’s a particular challenge for young adults. Social media promotes the beauty ideal of slim legs and a trained body. It can be difficult not to feel unsettled by this. If your mother is also affected by lipoedema, you may fear that your own children could develop lipoedema in the future. All this makes it so important to get support from your family, friends, a community, and an experienced team of healthcare professionals.
Manage Your Lipoedema Together
Every woman’s lipoedema journey is different, so everyone’s struggles are different too. Therefore, it’s slightly challenging to say that what works well for one person will also work for you. The good news is that you can benefit from the experiences of others to help you learn how to live your best life, with lipoedema.
Take advantage of your relative’s knowledge and experience when you get your first compression garment or consult your healthcare professional. You could also consider exercising or cooking together. Although lipoedema is considered to be a rare disease, there is a great and supportive community of lipoedema patients. Have a look at our Starting Program on LymphConnect for more information.
You also might like
The Role of Friendships When Living With a Chronic Disease
Being diagnosed with a chronic (long-term) condition such as lymphoedema or lipoedema can turn your life upside down. It can also impact your relationships with existing friends and create barriers to making new ones.
Why Mental Health Should Be a Global Priority
October 10th is World Mental Health Day, a day recognized annually, and designated by the World Health Organization (WHO) as one to raise awareness and mobilise efforts to support mental health.
June is Lipoedema Awareness Month
June has been designated as Lipoedema Awareness Month, which gives us the chance to raise awareness and make lipoedema a global priority. Medical societies, companies, and patient organizations in several countries will be launching campaigns to educate patients, their families and friends, and healthcare professionals about this condition.
Dating With Lymphoedema or Lipoedema
After more than two years of social distancing, you’re probably looking forward to getting out into the world again. Whether that’s meeting up with friends or family you’ve not seen for a long time or, perhaps, you’re thinking about going on a physical date; a dinner, rather than meeting for a virtual coffee? For many of us, this is something we may no longer be used to and, if you have lymphoedema or lipoedema, the prospect of an upcoming date comes with additional challenges.
Get Support From Others With Your Condition
It’s important to know you’re not alone. Join our private community and feel empowered by connecting with other lymphoedema or lipoedema patients.
Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me
Claudia Lymphoedema patient