Lipoedema and Genetics
It’s still not quite clear why and how lipoedema develops. However, many lipoedema patients report a positive family history. This means that if your mother or other female relatives are also affected by lipoedema, your situation is a very common one. Genetics are likely to play a role in the development of lipoedema. However, research on the exact mechanism of why and how lipoedema develops is still ongoing.
Hormonal Changes and the Onset of Lipoedema
No matter when the first lipoedema symptoms occur, they usually coincide with weight gain and hormonal changes. These can be related to puberty or starting to take birth control pills, as was likely the case in your situation. But it can also affect pregnant or menopausal women.
Challenges with Lipoedema
Living with lipoedema can be difficult, but it’s a particular challenge for young adults. Social media promotes the beauty ideal of slim legs and a trained body. It can be difficult not to feel unsettled by this. If your mother is also affected by lipoedema, you may fear that your own children could develop lipoedema in the future. All this makes it so important to get support from your family, friends, a community, and an experienced team of healthcare professionals.
Manage Your Lipoedema Together
Every woman’s lipoedema journey is different, so everyone’s struggles are different too. Therefore, it’s slightly challenging to say that what works well for one person will also work for you. The good news is that you can benefit from the experiences of others to help you learn how to live your best life, with lipoedema.
Take advantage of your relative’s knowledge and experience when you get your first compression garment or consult your healthcare professional. You could also consider exercising or cooking together. Although lipoedema is considered to be a rare disease, there is a great and supportive community of lipoedema patients. Have a look at our Starting Program on LymphConnect for more information.
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Healthy Treats for the Winter Season
Most of us associate wintertime with cozy evenings at home, enjoying indulgent treats. What would winter be without all these sweet goodies? Balanced nutrition is an important part of lymphoedema and lipoedema treatment as being overweight can worsen your symptoms. If you want to stick with your healthy lifestyle, we have some good news: there are plenty of healthy alternatives to enjoy.
Understanding the Range of Emotions that you May Feel having Lymphoedema
Being diagnosed with lymphoedema or lipoedema can bring a variety of emotions. It is a life-changing condition, and understandably, you will experience some struggles while you adjust. Seeing your body change and the impact on your lifestyle can be challenging but know you are not alone.
New Year's resolution: Friend or foe?
It's a common phenomenon that we observe at the beginning of every new year: many of us join fitness clubs, we decide to eat healthier, move and exercise more. We often set ambitious goals but just as quickly neglect them. Why do our New Year's resolutions fail ever so often and what can we do instead?
October is Breast Cancer Awareness Month
Breast cancer is the most commonly diagnosed cancer in women in Europe1 and the second most common in the US2. The National Breast Cancer Awareness Month is an annual campaign to raise awareness of this disease. In light of this great campaign, we want to take the chance to explain how lymphoedema relates to breast cancer.
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Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me
Claudia Lymphoedema patient