Listening to the Stories of Others

Lymphoedema is a unique and chronic condition that can be overwhelming and may be associated with feeling anxious or alone. Connecting with others who have lymphoedema can be an excellent way to help navigate through the condition and learn effective ways to help integrate into your daily life. 

Listening to the Stories of Others

Listening to the stories of others about how lymphoedema can be managed with the correct treatment, support and advice, can be encouraging.

Have you listened to Rachel’s story?

Rachel developed lymphoedema during breast cancer treatment. In the video, she talks about how it felt to get the diagnosis of lymphoedema and being faced with having to wear a compression garment for 18 hours each day. Being honest with her lymphoedema nurse specialist about how she was struggling with the compression garment opened up discussions. With the lymphoedema nurse specialist’s help she found a compression garment that was more suitable to her needs and it changed the way Rachel viewed managing her condition.

She has suffered from recurrent cellulitis as a complication of her lymphoedema. This has resulted in Rachel being hospitalised on more than one occasion in intensive care for sepsis related to her cellulitis. She explains the impact this has had on her and her family.

Despite all the challenges Rachel has faced, she focuses on the positives and encourages others to do the same. Her advice is to be “open to change” and to “think about what you can do, not what you can’t do”. Rachel has not made any changes to her lifestyle and still does all the things that she used to do such as dancing and going on holiday, the changes that she has made are the things that she does to benefit herself.

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It’s important to know you’re not alone. Join our private community and feel empowered by connecting with other lymphoedema or lipoedema patients.

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Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me

Claudia Lymphoedema patient