Are Lymphoedema and Lipoedema Hereditary Conditions?
This is probably one of the most frequent questions that patients with lymphoedema or lipoedema have when it comes to family planning.
Lymphoedema can have primary or secondary causes, the latter being more common. Primary lymphoedema occurs when the lymphatic system has not developed adequately (or is not functioning as it should) due to a genetic anomaly. Secondary lymphoedema occurs because of other underlying factors. Some examples of these are cancer and its treatment, obesity, or trauma. This means that some types of primary lymphoedema are inherited diseases, whereas most cases of secondary lymphoedema have different causes.
The situation is different with lipoedema. It is still unknown how and why lipoedema develops. The role of heritability continues to be investigated. Many lipoedema patients report similar signs and symptoms in female family members. Lipoedema can often be connected to hormonal changes such as during puberty, pregnancy or menopause, or while using birth control pills. Phases of weight gain play an important role here.
For more information, don’t hesitate to reach out to your healthcare professional to discuss your concerns.
How Pregnancy Can Affect Your Lymphoedema or Lipoedema
During pregnancy, your veins must transport about 20% more blood to supply your growing child. Over time, the weight of the uterus also leads to blood and fluid retention in the lower legs. All this may put extra stress on your lymphatic system and may also worsen your lymphoedema or lipoedema symptoms. However, you can adapt your treatment in close cooperation with your healthcare professional or carer so that you can enjoy this special time. It is important to continue wearing your compression garments throughout the day. Besides, there are several ways to support your well-being. Activities such as swimming, gentle walks, or pregnancy yoga have a relaxing effect on your body and mind. Supporting products such as back belts can relieve back pain and improve your posture.
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The Role of Friendships When Living With a Chronic Disease
Being diagnosed with a chronic (long-term) condition such as lymphoedema or lipoedema can turn your life upside down. It can also impact your relationships with existing friends and create barriers to making new ones.
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Winter Dinner Party
It's a familiar situation: a holiday season packed with indulgent treats, heavy meals, and a list of shows we want to watch on TV. This, combined with weather that's not always great leaves us with little time or inclination to exercise and move. This article won't solve all these issues but will hopefully inspire you with simple, healthy dinner recipes.
Get Support From Others With Your Condition
It’s important to know you’re not alone. Join our private community and feel empowered by connecting with other lymphoedema or lipoedema patients.
Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me
Claudia Lymphoedema patient